Clabburn, O and O'Brien, M (2015) 'Exploring the impact on young people who are caring and grieving for a parent with motor neurone disease.' British Journal of Neuroscience Nursing, 11 (5). pp. 243-248.
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Abstract
Background: Motor Neurone Disease (MND) is a terminal neurological disease. Little attention has been paid in the literature to investigating the experiences of children and young people who provide care for a parent with the disease. Aim: To explore how providing care for a parent with MND impacts upon a young person?s life. Sample: A purposive sample of seven young people who were bereaved or currently providing care for a parent with MND. Methods: A qualitative methodology with informal semi-structured interviews. Results: Five key themes were identified; initial MND diagnosis, changing family roles, implications upon education, implications upon social life and positive outcomes. Conclusion: The study suggests that young carers for a parent with MND experience substantial challenges in addition to some positive outcomes.
| Item Type: | Article |
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| Keywords: | Motor neurone disease, amyotrophic lateral sclerosis, young carers, end of life, qualitative methods |
| Divisions: | School of Sciences |
| Related URLs: | |
| Date Deposited: | 26 Feb 2019 17:06 |
| Last Modified: | 15 Aug 2021 09:52 |
| ISSN: | 1747-0307 |
| URI / Page ID: | https://researchspace.bathspa.ac.uk/id/eprint/12023 |
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