Exploring the impact on young people who are caring and grieving for a parent with motor neurone disease

Clabburn, O and O'Brien, M (2015) 'Exploring the impact on young people who are caring and grieving for a parent with motor neurone disease.' British Journal of Neuroscience Nursing, 11 (5). pp. 243-248. ISSN 1747-0307

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Official URL: http://dx.doi.org/10.12968/bjnn.2015.11.5.243

Abstract

Background: Motor Neurone Disease (MND) is a terminal neurological disease. Little attention has been paid in the literature to investigating the experiences of children and young people who provide care for a parent with the disease. Aim: To explore how providing care for a parent with MND impacts upon a young person?s life. Sample: A purposive sample of seven young people who were bereaved or currently providing care for a parent with MND. Methods: A qualitative methodology with informal semi-structured interviews. Results: Five key themes were identified; initial MND diagnosis, changing family roles, implications upon education, implications upon social life and positive outcomes. Conclusion: The study suggests that young carers for a parent with MND experience substantial challenges in addition to some positive outcomes.

Item Type: Article
Keywords: Motor neurone disease, amyotrophic lateral sclerosis, young carers, end of life, qualitative methods
Divisions: College of Liberal Arts
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Date Deposited: 26 Feb 2019 17:06
Last Modified: 06 Mar 2019 14:44
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