In ordinary times, in extraordinary times: consent, newborn screening, genetics, and pandemics

Brownsword, R and Wale, J (2020) 'In ordinary times, in extraordinary times: consent, newborn screening, genetics, and pandemics.' BioLaw Journal - Rivista di BioDiritto. ISSN 2284-4503 (Forthcoming)

Abstract

The relationship between parents, acting on behalf of their children, and healthcare professionals, can generate contentious disputes. While some will support the rights of parents, others will push-back against the right to veto actions that are judged by the professionals to be in the interests of the child. Whereas in ordinary times, those who challenge parental rights and consent might appeal to professional duty and the optimisation of the health, in extraordinary times, these familiar appeals are superseded by appeals to responsibility, solidarity, and dangerous ‘states of exception’. This paper examines these issues against the backdrop of newborn genetic screening.

Item Type: Article
Keywords: proxy consent, newborn screening, genetic screening, stewardship, extraordinary times
Divisions: Bath Business School
Date Deposited: 20 Oct 2020 14:46
Last Modified: 20 Oct 2020 14:47
Request a change to this item or report an issue Request a change to this item or report an issue
Update item (repository staff only) Update item (repository staff only)