A call to action for conducting research with people with profound and multiple learning disabilities

Read, S, Simmons, B, Levinson, M.P and Bush, T (2021) 'A call to action for conducting research with people with profound and multiple learning disabilities.' PMLD Link, 33.3 (100). pp. 6-7. ISSN 2042-5619

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Abstract

People with PMLD are marginalised in society. This marginalisation extends to research, and people with PMLD are often the ‘subjects’ of university studies. This means that research is often done ‘on’ people with PMLD rather than ‘with’ them and with those involved in their care. In this article we describe our vision for a new research agenda. We are developing a research network run by disabled people, for disabled people. We want to explore how people with PMLD and their families/carers/allies can be involved in conducting research that matters to them.

Item Type: Article
Subjects: L Education > L Education (General)
Divisions: School of Education
Research Centres and Groups: Arts for Social Change Research Group
Centre for Research in Equity, Inclusion and Community
Date Deposited: 27 Jan 2022 17:29
Last Modified: 17 May 2022 15:16
URI / Page ID: http://researchspace.bathspa.ac.uk/id/eprint/14530
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