In ordinary times, in extraordinary times: consent, newborn screening, genetics, and pandemics

Brownsword, R and Wale, J (2021) 'In ordinary times, in extraordinary times: consent, newborn screening, genetics, and pandemics.' BioLaw Journal - Rivista di BioDiritto, 1 (Sp). pp. 129-153. ISSN 2284-4503

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Official URL: http://dx.doi.org/10.15168/2284-4503-778

Abstract

Against the backdrop of newborn genetic screening and pandemics, this article examines disputes between parents, acting as proxies for their children, and healthcare professionals. While some will support parents, others will push-back against proxy consent and the right to veto actions that are proposed by the professionals. Whereas in ordinary times, such a push-back might seek to displace or downgrade parental rights (e.g. by appealing to professional duty or the optimisation of health) or to de-centre or dilute consent, in extraordinary times, rights and consent are superseded by appeals to responsibility, solidarity, and even “states of exception”.

Item Type: Article
Note:

This article was published online first on 22 December 2020 ahead of its official inclusion in an issue.

Keywords: proxy consent, newborn screening, genetic screening, stewardship, extraordinary times
Divisions: Bath Business School
Identification Number: https://doi.org/10.15168/2284-4503-778
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Date Deposited: 20 Oct 2020 14:46
Last Modified: 12 May 2021 14:02
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